Best Facebook Resources for RSD/CRPS

Since the release of The Untold Story of Kim, I’ve made some new friends and fans who suffer from the insidious syndrome. I’ve also spent some time perusing Facebook looking for like-minded people. Often those who suffer debilitating pain feel alone and don’t know where to turn. These great FB places can help you to learn more about RSD/CRPS, share your story, or offer a friendly voice.

Some are pages you can “Like”, and some are groups you can join. Go and give them a Like or join up with others just like you.

 

Reflex Sympathetic Dystrophy Association

Image

RSDSA promotes awareness of CRPS, funds research towards more effective treatments and a cure, and supports individuals with CRPS. 

https://www.facebook.com/RSDSA?ref=br_tf

 

Invisible Disabilities Association

Image

The Invisible Disabilities Association (IDA) IDA’s Mission is to Encourage, Educate and Connect People and Organizations Touched by Illness, Pain and Disability Around the Globe!

https://www.facebook.com/InvisibleDisabilities/info

 

RSD aka Really Sucks Dystrophy

Complex regional pain syndrome · Reflex Sympathetic Dystrophy Syndrome ·Chronic pain

This is a community (Group) to share with fellow sufferers of RSD/CRPS

 

RSD/CRPS Friends In Pain

Image

Welcome and thank you for visiting my page! I created this in order to help give inspiration and hope, by using quotes, stories and links, to people with not only RSD/CRPS, but also other chronic pain disorders!!

https://www.facebook.com/RSDFriendsinPain

 

RSD/CRPS Doesn’t Own Me

Image

Our mission is to remind people with RSD/CRPS that life is still worth living. We want to offer support, stories of hope, and encouragement to fellow RSD/CRPS Angels. It is our hope to raise RSD/CRPS awareness that will help others understand the seriousness of this disease.

https://www.facebook.com/CRPSDOM

 

Chronic Regional Pain Syndrome (a.k.a. Reflex Sympathetic Dystrophy)

Image

This group is for those who have CRPS, and for those who know someone with CRPS that want to better understand what they are dealing with.

https://www.facebook.com/groups/CRPS.RSD/

 

rsdcrpssociety

Image

 A small, intimate group with lots of interaction. You’ll find friends here.

https://www.facebook.com/groups/rsdcrpssociety/

 

 

If you have not read The Untold Story of Kim, the Kindle version is available at Amazon for just 2.99.

http://www.amazon.com/The-Untold-Story-Kim-Robinson-ebook/dp/B00J44GFKM/ref=pd_sim_kstore_4?ie=UTF8&refRID=072P09FSPVJAC77TQYQB

Image

Paperback will be available very soon. 

 

Advertisements

One thought on “Best Facebook Resources for RSD/CRPS

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s